Plagiocephaly Awareness Week – May 16-22

This week is Plagiocephaly Awareness Week in the UK and many of us “Plagio Moms” are hoping to bring the movement to the US as well.

For those who aren’t aware, the non-technical definition of plagiocephaly (plagio) is the abnormal flattening of one side of the skull. One cause of plagio  is the pressure in the womb causing the baby to have a “diamond” shaped head when seen from above. While it’s very rare for a baby to be birthed vaginally and NOT have a mis-shaped head, most babies acquire a normal headshape after a few weeks. Any abnormal head shape after the 6 week point is plagiocephaly.  The other common cause of plagio is laying on one side of the head for long periods of time.  Soon that side starts to get a little flat and then it becomes the only comfortable way to lay and the baby lays on it ALL the time, worsening the problem. When the  “Back to Sleep” campaign promoting back sleeping to prevent SIDs launched in 1992, cases of plagiocephaly soared.

Flat head vs Round Head (Image from Google)

Positional plagiocephaly, as this is commonly called, is often exasperated by a condition called torticollis which means “stiff neck.” Babies with torticollis are more prone to plagio because they have a poor range of motion with their head and usually always look/lay/sleep the same way and thus, on the same spot on their head. Mason had torticollis and if you look at pictures from when he was a wee baby, he was NEVER looking to the left and always had his head turned to the right. It took months of physical therapy to loosen his neck muscles so he had could look both ways.

There are different degrees of plagiocephaly. A perfectly round headshape is 0 mm (zero millimeters of difference) which is probably pretty rare! “Normal” heads measure 0-3 mm of difference. Mild plagiocephaly is considered 4-6 mm and most people don’t start treatment at this level of variance. 7-11 mm is considered moderate plagiocephaly and severe plagiocephaly is 12 mm and up. The more severe the plagio, the more noticeable the flattening and off shape of the head is and the more likely that the child’s ears (and possibly eyes) do not line up properly. At its worst, Mason’s plagio was over 12 mm.

Normal Head vs Plagio Head (Image from Royal Children’s Hospital)

Left untreated, moderate to severe plagiocephaly can lead to obvious problems like being teased, glasses needing special adjustments for un-even eyes and ears, helmets and hats not fitting correctly, and limited hairstyles. But most people are not aware that plagiocephaly can lead to problems with TMJ and migraines and there has also been a strong link shown with children with plagio having noticeable learning delays. It’s definitely NOT  just a cosmetic problem.

Statistics from the UK show  that 1 in 3 babies have plagiocephaly. Statistics in the US show 1 in 10, which is still a very significant number.  While I haven’t met any other local “helmet babies” since Mason began his journey, everyone I TALK to seems to have a nephew or cousin or child 10 years ago who went through the same thing, so it’s definitely more common than anyone would imagine!

Now that I’ve written a novel, stop back tomorrow to learn more about how you can PREVENT plagio, some of it’s treatment options, and all that good stuff! Knowledge is power!

8 thoughts on “Plagiocephaly Awareness Week – May 16-22

  1. LeeAnn Post author

    Very informative post! I’m so glad that Mason’s plagiocephaly is being correct at this young age.

    He rocks his helmet! I actually did see another baby a couple weekends ago with a helmet it on…this one was pink. I saw A LOT of people staring at this baby. I definitely think more awareness needs to be brought to this condition. Therefore, I stumbled this post so many others will hopefully see it.

  2. Kate Chauhan Post author

    We had an open day as part of the UK plagiocephaly awareness week and had great response. But we are struggling to get the message out to the families that need it.
    Sites like yours are great for getting the message out for the importance of tummy time and the early treatment if torticollis, and that treatment is possible.
    Keep up the good work!

  3. Molly Post author

    Being your friend irl I thought I knew quite a bit about this subject but I guess I was sadly mistaken. This was super informative yet easy to understand! Thanks 🙂

  4. Anne Zachry Post author

    I so appreciate this post! Thanks for sharing this information. I’m curious about what is being done to promote Plagiocephaly Awareness Week in the U.S. as I would love to play a role in getting the word out. I’ll be glad to post about it on my blog or website and help in anyway that I can. Anne

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